Links and Resources

• Email Support Groups
  PWSA (USA) support email communication groups for providers and families [Click here]
• For Families
  • The Young Child with Prader-Willi Syndrome, Janice M. Agarwal, PT.  This handout was created for families at the NJ conference. - 11/2009
  • Summer Camps
  • Holiday Resources
    • Halloween - Trick or Treats
    • Holiday Survival Tips
  • Policies
    • Least Restrictive Environment and the Right To Eat
  • Laughter Through Tears
  • Does a Child with Disabilities mean a Disabled Marriage?
  • Support for Diet with Extended Family Members
  • About.Com Special Needs Children 
  • Online Disability Community    
  • Family Café                                               
• For Providers
  • Adults With Prader-Willi Syndrome and Decisions Regarding Least Restrictive Environment and the Right To Eat
  • Positional Asphyxia
  • Parent Provider Relations
  • Provider: Do and Don'ts
  • Parent: Do and Don'ts
  • Recommended Publication - See publication order form...[click here]
    • Supporting Adults with Prader-Willi Syndrome - Goff
    • Handouts in members only
  • PWSA (USA) provider Directory
  • State by State list of residential programs        
  • The Arc USA    
  • Supporting Adults in a Residential Setting - BJ Goff
  • For those wanting to start a supportive living home
  • Parent Provider Relations - BJ Goff
    • Provider: Do and Don'ts
    • Parent: Do and Don'ts
• For Educators

  • News Flash: IDEA Report Card

  • New DVD for PWS School Education

  • Conferences and Events

  • Sample letter to parents of classmates of a child with PWS

  • Handout- School Information for Staff

  • Food in the classroom is NEVER ok. (PDF)

  • Homework...A Lesson in Frustration (PDF)

  • School Diet Form (PDF)

  • Behavior Manifestations (PDF)

  • Positive Behavior Tips for Educators (PDF)

  • Health Concerns and the Student w/ Prader-Willi Syndrome Information for School Staff (PDF)

  • Wrightslaw Advocacy and Law Libraries

  • Tips for success for children with PWS in a school setting

  • Positive Behavior Tips for Educators

Helpful Products and Instructions

• Locking the Cabinets and Refrigerator
• Lockitdown by Marinelock LLC - Refrigerator locks
• Magnetic Kitchen Locks
• Double sided keyless entry door lock
• Medical Alert Bracelets
• MedicAlert® 24-Hour Emergency Response

Additional non-medical links and resources [Click here]

 edited: 11/16/2010