Phone: 800-926-4797 or 941-312-0400
Your membership provides this website - Join Today!

 

HOME

BE INFORMED
  
> About PWS
  
> Get Publications
 
 > About PWSA (USA)
        
Board of Directors
        
Adults with PWS Advisory
       
 Office Staff

MEDICAL
   > Health Concerns
 
 > Medical Alert
  
> Psychiatric
  
> Diet Resources
  
> Growth Hormone

RESEARCH
   >
Research Grants
   >
Funded Research

   > Participants Wanted
   > Research Topics
   > Scientific Advisory Board
   > Clinical Advisory Board

GET INVOLVED
 
  > Spread Awareness
  
> Become member
   >
Registry

SUPPORT
  
 > Newly Diagnosis
   >
Non-Medical

 
 > For Families
  
> For Providers
           
Advisory Board
   >
For Educators

   > State Chapters
   > Links and Resources

MEDIA

GIVE

CONTACT US

 

National Office Staff & Other Key Contacts

Gray Spacer Bar

8588 Potter Park, Suite 500
Sarasota, FL 34238
phone: 800-926-4797
fax: 941-312-0142
email: pwsausa@pwsausa.org

NATIONAL OFFICE STAFF & KEY VOLUNTEERS


David Crump
Interim Executive Director

 


Janalee Heinemann
Director of Research and Medical Affairs


Debi Applebee
Office Manager

 


Cindy Beles
Triage Advocate / Order Specialist
Jodi O'Sullivan

Jodi O'Sullivan
Development Associate

Lin Sherman
Accounting and Systems Assistant  


Barbara McManus
Director of Family Support


Dorothy Sass
Administrative Assistant
  
 

 

Picture not available

 

 

Kathy Notarino
Crisis Counselor



David Wyatt 
Crisis Counselor 

Kate Beaver
Crisis Counselor 


Gus Schrowang
Communications Specialist

 


Marcia Dunn
Volunteer 

 


John Butler
Volunteer  


Ann Seigel
Volunteer



Lota Mitchell
Gathered View Editor Volunteer

edited: 08/31/2011

 

Return to Home page

PWSA(USA) Disclaimer 

Membership
Payments

PWSA (USA)
Privacy Policy

PWSA (USA) Link Policy

Email PWSA(USA)

 Email Webmaster