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To donate,
click here.
Type your sweetheart name into the “Find” box at the top right hand side
of the page to find your sweetheart’s donation page, or make a donation
to “Prader-Willi Syndrome Association USA 9th Annual
Valentine Drive” page in honor/memory of all those who have/had PWS or
for a sweetheart who does not have their own page.
Dear Family and Friends,
I want to welcome and
thank all of you for considering PWSA (USA)’s 9th Annual Valentine’s
Research Fund Campaign. We need your help more than ever this year to
support research. In the past six years, PWSA (USA) has committed over
a million, two hundred thousand dollars to fund research. This year our
four grants targeted the hyperphagia (uncontrollable drive to eat) which
is the most life limiting aspect of the syndrome.
In 2011 our goal is to
raise $50,000 for research, to include the possibility of funding a
very exciting study with real potential for providing therapeutic relief
from the hunger. This study would explore a procedure that has
successfully changed food craving in healthy subjects, to see what the
response is in persons with PWS. Data from a very small test group of
adults with PWS has shown encouraging results. As we all know, finding
a way to reduce the hunger craving that our loved ones experience would
be a tremendously important discovery. |
