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Prader-Willi Syndrome In The Spotlight

 

Dear PWSA (USA) members,

We are excited to announce two shows starring two of our PWSA (USA) families that will give great awareness for Prader-Willi syndrome!

ABC's Extreme Makeover: Home Edition, (scheduled to appear May 9th, 8 PM on ABC). The Starkweather family from Tulsa, OK is getting a new home, courtesy of thousands of volunteers and ABC's Extreme Makeover: Home Edition. Amy and Toen Starkweather and their three sons — Jared, 15, Ryan, 13, and Ethan, 9, PWS — were chosen for the show from a pool of finalists. Their “Move That Bus” moment was just one of the many surprises in store for this family. Learn more about Extreme Makeover at http://abc.go.com/shows/extreme-makeover-home-edition.

Mystery Diagnosis (aired on March 22nd, 10 PM Eastern on Discovery Health Channel and will likely repeat). Conor Heybach who has PWS (on our Adults with PWS Advisory Board) and his parents Sue and John, who is co-chair of the PWSA (USA) governing board, told about the 16 years they lived without a diagnosis. You can learn more about Mystery Diagnosis at http://health.discovery.com/fansites/mystery-diagnosis/mystery-diagnosis.html.




Edited: 02/09/2012

 

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