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PWSA (USA) is an
organization of families and professionals
working together to promote and fund research,
provide education, and offer support to enhance
the quality of life of those affected by
Prader-Willi syndrome.
Información en Español
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In the spotlight
- Read The Washington Post’s June 23, 2009 article
about the First International Hyperphagia Conference by
clicking here. Please note: Janalee Heinemann’s, PWSA (USA)
director of research and medical affairs, clarification of a
misquote. She said, “I did not say, ‘I do not think there is
going to be a pill.’ I said that ‘I do not think it will be so
simple to find the right pill as I once thought.’…It still is
good publicity.”
- Sign-On in Support of the IDEA Fairness Restoration Act
(HR 2740)
click here
- The Consumer Guides to Getting and Keeping Health Insurance,
which are researched and published by Georgetown University’s
Health Policy Institute, are now available free online at healthinsuranceinfo.net. We encourage you to use this resource.
- Find us on Facebook!
Click here
to join our Cause
and dedicate your page to raising PWS awareness.
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Help our PWS Researchers Make Progress on the Syndrome.
For many of them, they are dependent on your help. Please
consider participating in one or more of their research
projects. Click
here and join the PWS research team.
- Regional Focus and Support Groups in your area. [Click
here] to learn more.
- Front Page News Archive Items
formerly on
our front page that cannot be found elsewhere on our site may be
kept in a news archive.
Updates
-
New Website Resource! PWS Overview and Management - Medical Home
Portal Development, Utah Medical Center.
Once you access this website and go to the section called
“Diagnosis and Conditions” click on the different links. Dr.
Merlin Butler, chairperson of our PWSA (USA) Scientific Advisory
Board, reviewed and edited this website written for families and
primary care physicians needing quick and accurate
information. To access this site, [Click
here]
- Organizational changes - a page from our current
issue of the Gathered View [Click
here]
- Recent medical and research updates...[click
for more]
- Growth Hormone
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SSI Resource
-
Get the newsletter, The
Gathered View,
electronically
Click
here
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If you are in need of help or advice, please call (800) 926-4797 or
email national@pwsausa.org.
We are here to help you!

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